WDBJ 7 is bringing viewers a story that shows you should never give up.
A 17-month-old girl has spent most of her life in and out of the hospital and now she has the community rallying behind her.
It wasn't until a few weeks ago that TayLynn Snyder’s family found out which genetic disorder she was born with. It's a rare one and the family is learning new things about it every day but they are also learning they are not alone.
"To me, she's a real inspiration,” said TayLynn’s grandmother and primary caregiver Teresa Widener.
Widener said her granddaughter wakes up every morning and fights to stay alive.
"She's had a lot she's gone through,” she said. “She lost her leg when she was two months, the kidney cancer we had no idea about and it was real hard too."
Some of TayLynn’s hair is falling out because of the chemo, but it’s not only the cancer the family has to worry about.
Doctors had a hard time pinpointing TayLynn's condition until this year. That's when they found out she was born with a genetic condition called 1P36 Deletion Syndrome.
"It seems like no matter what she gets she keeps coming back stronger and she's just a fighter,” said Widener. “She's just a tough baby."
The condition means she has low muscle tone and will probably be in a wheelchair the rest of her life. It's rare, but Widener recently found comfort in finding out that a Roanoke couple has a daughter who is up against the same fight.
"They were just excited because they had never heard of any other cases here in Roanoke,” said Widener when asked how it felt to meet a family with a similar health problem. “It's like 1 in 10,000 people that have 1P36."
Now, the families are teaming up for TayLynn.
Star City Riders are sponsoring a charity motorcycle ride this weekend in Roanoke. The goal is to raise enough money to build a ramp and buy an air purifier for her.
Widener said some days are better than others, but she's holding onto hope that TayLynn will keep fighting the fight.
“Sometimes I feel like giving up, but as long as she’s here I won’t give up for anything in the world."
TayLynn is on Medicaid but not everything is covered by insurance.
The ride will take place on Saturday at the Roanoke Civic Center. Registration begins at noon and kick stands go up at 1 pm.
To find out more information, CLICK HERE. https://www.facebook.com/events/752819481395249/