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Highlights

A collection of news and information related to Edwards Syndrome published by this site and its partners.

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    Sep 27, 2012 |Story| WDBJ7

  1. Botetourt County parents who lost baby are now helping others

    Their baby girl was born with a rare chromosomal disorder that allowed her to only live for seven hours. But this short life lives on because of her parents.
    WDBJ-TV Anchor/Reporter
    Their baby girl was born with a rare chromosomal disorder that allowed her to only live for seven hours. But this short life lives on because of her parents. When you step into Matt and Ashley Cecil's Botetourt County home this week you'll notice the...

    Tags: Human Interest

    2. Feb 6, 2013 |Story| Chicago Tribune

  2. Fetal test creates options, uncertainty

    When Ramona Burton became pregnant with her second child this year, the 37-year-old knew that her age put her baby at an elevated risk for Down syndrome, even though screening with ultrasound and standard blood tests raised no warning flags.
    When Ramona Burton became pregnant with her second child this year, the 37-year-old knew that her age put her baby at an elevated risk for Down syndrome, even though screening with ultrasound and standard blood tests raised no warning flags. Burton...

    Tags: Insurance, Sequenom Incorporated, Miscarriage, Genetic Condition, Medical Procedures and Tests

    3. Apr 6, 2012 |Story| CNN

  3. Rick Santorum's Daughter Hospitalized Again

    (CNN) -- Rick Santorum's three-year-old daughter Isabella, who suffers from a chromosomal condition called Trisomy 18, is back in the hospital, his spokesman Hogan Gidley announced Friday.
    CNN
    (CNN) -- Rick Santorum's three-year-old daughter Isabella, who suffers from a chromosomal condition called Trisomy 18, is back in the hospital, his spokesman Hogan Gidley announced Friday. "Rick and his wife Karen have taken their daughter Bella to the...

    Tags: Rick Santorum, Health, Genes and Chromosomes, Human Body, National Institutes of Health

    4. Apr 6, 2012 |Story| Allentown Morning Call

  4. Santorum's daughter Bella hospitalized

    Rick Santorum's youngest child, Isabella, who has a condition similar to Down Syndrome, was taken to the hospital Friday morning.
    Call Washington Bureau
    Rick Santorum's youngest child, Isabella, who has a condition similar to Down Syndrome, was taken to the hospital Friday morning. "Rick and his wife Karen have taken their daughter Bella to the hospital. The family requests prayers and privacy as Bella...

    Tags: Rick Santorum, Health, Genes and Chromosomes, Genetic Condition, Human Body

    5. Mar 26, 2012 |Story| Orlando Sentinel

  5. Families support each other facing rare genetic disorder

    <span style="font-family: 'Times New Roman';">Some special needs children have such rare genetic chromosomal disorders that it can be difficult for parents to even locate other survivors, let alone to ever dream about meeting them.</span>
    special to the Orlando Sentinel
    Some special needs children have such rare genetic chromosomal disorders that it can be difficult for parents to even locate other survivors, let alone to ever dream about meeting them. But this month nearly 20 families traveled from across the country,...

    Tags: Health, Genes and Chromosomes, Genetic Condition, Human Body, Ocala

    6. Apr 9, 2012 |Story| Allentown Morning Call

  6. Romney suspends Santorum attack ads while Bella is in the hospital

    Mitt Romney's campaign, who was scheduled to launch an attack Monday on Rick Santorum across Pennsylvania, pulled back as the former senator has stepped off the trail to be with his hospitalized daughter.
    Call Washington Bureau
    Mitt Romney's campaign, who was scheduled to launch an attack Monday on Rick Santorum across Pennsylvania, pulled back as the former senator has stepped off the trail to be with his hospitalized daughter. "We have done this out of deference to Sen....

    Tags: Rick Santorum, Mitt Romney, Health, Genetic Condition, Hospitals and Clinics

    7. Apr 10, 2012 |Story| KTLA-LTV

  7. Rick Santorum Suspends Campaign, But "Not Done Fighting"

    WASHINGTON -- Rick Santorum suspended his campaign for the Republican presidential nomination Tuesday, but said he is "not done fighting" for Americans.
    CNN/KTLA News
    WASHINGTON -- Rick Santorum suspended his campaign for the Republican presidential nomination Tuesday, but said he is "not done fighting" for Americans. The development means that Mitt Romney is now the certain GOP nominee to take on President Barack...

    Tags: Barack Obama, Republican Party, Rick Santorum, Republican National Conventions, Reince Priebus

    8. Apr 10, 2012 |Story| WPIX-LTV

  8. Rick Santorum Suspends Presidential Campaign

    Rick Santorum announced Tuesday that he is suspending his Republican presidential campaign after a weekend of "prayer and thought," effectively ceding the GOP nomination to Mitt Romney.
    Rick Santorum announced Tuesday that he is suspending his Republican presidential campaign after a weekend of "prayer and thought," effectively ceding the GOP nomination to Mitt Romney. The former Pennsylvania senator made his announcement following...

    Tags: Barack Obama, Republican Party, Rick Santorum, Republican National Conventions, Reince Priebus

    9. Apr 10, 2012 |Story| CNN

  9. Santorum suspends presidential campaign

    WASHINGTON (CNN) -- Rick Santorum announced Tuesday that he is suspending his Republican presidential campaign after a weekend of "prayer and thought," effectively ceding the GOP nomination to Mitt Romney. The former Pennsylvania senator made his...

    Tags: Barack Obama, Republican Party, Rick Santorum, Republican National Conventions, Elections

    10. Apr 10, 2012 |Column| WXIN-LTV

  10. Santorum suspends campaign for presidential nomination

    Rick Santorum announced Tuesday that he is suspending his campaign for the Republican presidential nomination after a weekend of "prayer and thought."
    Rick Santorum announced Tuesday that he is suspending his campaign for the Republican presidential nomination after a weekend of "prayer and thought." The development means that Mitt Romney is now the certain GOP nominee to take on President Barack Obama...

    Tags: Republican Party, Barack Obama, Rick Santorum, Republican National Conventions, Elections

    11. Jan 31, 2012 |Story| Allentown Morning Call
  11. |Story
    12. Jan 30, 2012 |Story| Chicago Tribune
  12. |Story
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Edwards Syndrome Photos
In 2008 the Santorum's eighth child, Isabella, was born...
(November 26, 2012)
Santorum on disability rights